LOL
Can't you tell? I made it through the heat wave called July 2010 in the NY/NJ area. It was definitely a test of my strength and will. I would come home, turn on AC, keep lights dark.
But I am here.
So I've been to both MS Doctor and the urology doctor in NYC (the BEST!! Dr. Rosenblum in NYU Medical Center). I am going to contact the Walk Aid specialist to see if I can get an appt. for evaluation.
I'm uber excited (been watching too much tv)
So again, I am going to post more.
Saturday, August 14, 2010
Saturday, July 17, 2010
Being a recluse...
My behavior lately has been very reclusive of late...I go to work, come home, go to work, come home. I don't necessarily think it's the fatigue. But I have to blame it. I don't go anywhere...then the next week I am no where to be found, I am on the go.
Last week I drove to Atlantic City and back within 7 hours, when I came home the only thing is to drop down and go to sleep. I think this fatigue is repercussion of that..so I am going to drop my microphone and walk away...
stay tuned during this interruption...
Last week I drove to Atlantic City and back within 7 hours, when I came home the only thing is to drop down and go to sleep. I think this fatigue is repercussion of that..so I am going to drop my microphone and walk away...
stay tuned during this interruption...
Friday, July 2, 2010
Relationships
I never wanted this blog to be about relationships - especially romantic b/c I can only comment on mine and how MS came into play.
I've learned so much about who is "real" and who is for me, since MS has came to the forefront.
Once I was diagnosed, I've lost relationships (obvious that they were never "real") and I've gained new ones. I've developed greater friendships with some old ones and the most important relationship - was myself.
I learned not to put ANYONE before myself. If I am not well, I can not take care of my son.
I cut all my hair off - swore off relaxers - it was a very cleansing thing to do. I have to say I picked up other obsessions such as accessories and sneakers but more on that later.
What really matters is that everyone goes through relationships, some good,some bad, some lasting, some only for a minute. We really have to take from those relationships and just move on. *shrug*
You can't hold on to anything that wants to slip away.
I've learned so much about who is "real" and who is for me, since MS has came to the forefront.
Once I was diagnosed, I've lost relationships (obvious that they were never "real") and I've gained new ones. I've developed greater friendships with some old ones and the most important relationship - was myself.
I learned not to put ANYONE before myself. If I am not well, I can not take care of my son.
I cut all my hair off - swore off relaxers - it was a very cleansing thing to do. I have to say I picked up other obsessions such as accessories and sneakers but more on that later.
What really matters is that everyone goes through relationships, some good,some bad, some lasting, some only for a minute. We really have to take from those relationships and just move on. *shrug*
Mobility
It came a time that I wanted something else besides the cane to help me get around - it became so hard to walk. I was able to walk blocks upon blocks. So I decided to get a scooter, I was more than embarrassed about it. I am going to be honest. I'm already self conscious that I am walking with a cane.
A coworker brought in his mother in law's scooter to let me use for the MJB/Jay Z concert back in 2008 and I was very eager about it. And the great service I got at MSG from security and ticket agents - made me feel special. Like I had nothing to worry about. No one was looking at me with curiosity.
I soon got my own, and b/c my insurance coverage required that I pay 10% - I only paid $75!
That was such a low cost for me to get out of the house. I was no longer trapped.
The site that I used was www.pridemobility.com - I have the GoGo Ultra X.
It's really cool, it breaks down into 5 pieces (including the basket) which fits well into my trunk.
Now the only stares I get is from senior citizens and kids! I often just refer those people who actually ask where did I get it from.
The pharmacy that carried it was Elmora Pharmacy in Elizabeth, NJ.
If you want to find it near you, go to Pride Mobility's website and search for locations.
A coworker brought in his mother in law's scooter to let me use for the MJB/Jay Z concert back in 2008 and I was very eager about it. And the great service I got at MSG from security and ticket agents - made me feel special. Like I had nothing to worry about. No one was looking at me with curiosity.
I soon got my own, and b/c my insurance coverage required that I pay 10% - I only paid $75!
That was such a low cost for me to get out of the house. I was no longer trapped.
The site that I used was www.pridemobility.com - I have the GoGo Ultra X.
It's really cool, it breaks down into 5 pieces (including the basket) which fits well into my trunk.
The pharmacy that carried it was Elmora Pharmacy in Elizabeth, NJ.
If you want to find it near you, go to Pride Mobility's website and search for locations.
Monday, June 28, 2010
Funny MS Video
It is not often that people feel that multiple sclerosis is something to laugh at. But you got to laugh at life.
Break my stride
Today I didnt go to work today...mostly bc I am sick - how so?
Well, it's a variety of reasons...mainly bc the heat is oppressive...I think the humidity hates me.
Well that may be a strong word. I think it actually tries to break me down. It is trying to make me a failure and simply put - Failure is not an option.
Well, it's a variety of reasons...mainly bc the heat is oppressive...I think the humidity hates me.
Well that may be a strong word. I think it actually tries to break me down. It is trying to make me a failure and simply put - Failure is not an option.
Heat Wave
Ok, it has been over 90 for what it seems like an eternity.
I haven't been out the house since Friday, except to go to church yesterday. I then ran back home. I know the heat/humidity affects everyone differently - and good golly miss molly - its kickin my butt.
I am going to have to stay cool for now. Actually its gotten so bad that I will have to call out sick today from work. I've always been the one to be the 1st up in work. I arrive 30mins early b/c that is what I was just taught.
Not today my friend.
I haven't been out the house since Friday, except to go to church yesterday. I then ran back home. I know the heat/humidity affects everyone differently - and good golly miss molly - its kickin my butt.
I am going to have to stay cool for now. Actually its gotten so bad that I will have to call out sick today from work. I've always been the one to be the 1st up in work. I arrive 30mins early b/c that is what I was just taught.
Not today my friend.
Saturday, June 26, 2010
2010 - Update
Soooooo it's like I checked out and never came back on.
Well, first and utmost - I am doing well. I am blessed to be in good health and a good mood.
I promised a coworker - Q.D. that I will post something at least once a week, since I simply haven't posted. I need to use this blog, for what I originally started for. To bring to light to those like me, who have MS, or any other disability.
Sometimes, when you are young, urban...you may feel like there isn't as much information available to you as others.
So first things first, I did attend the 2010 MS Walk, at Liberty State Park in Jersey City. It was beautiful! Kinda of brisk, but beautiful nevertheless.
I felt so good after the walk, inspired by all of those who have MS that wasn't able to walk.
I had a great team of walkers with me that included coworkers - former and current - and of course my great-Uncle.
Even though some people couldn't show up, it was appreciated that they even thought about it.
Well, first and utmost - I am doing well. I am blessed to be in good health and a good mood.
I promised a coworker - Q.D. that I will post something at least once a week, since I simply haven't posted. I need to use this blog, for what I originally started for. To bring to light to those like me, who have MS, or any other disability.
Sometimes, when you are young, urban...you may feel like there isn't as much information available to you as others.
So first things first, I did attend the 2010 MS Walk, at Liberty State Park in Jersey City. It was beautiful! Kinda of brisk, but beautiful nevertheless.
I felt so good after the walk, inspired by all of those who have MS that wasn't able to walk.
I had a great team of walkers with me that included coworkers - former and current - and of course my great-Uncle.
Even though some people couldn't show up, it was appreciated that they even thought about it.
Saturday, January 23, 2010
New Drug Approved for Walking with MS
So I've been experiencing some emotional waves recently. I've been having a lot of pain recently. I have to remain positive about it, b/c I feel regardless my feelings will truly help me with pain-management.
I decided to go to the National MS Society's website, so I can register my team - Young Urban & MS or Lena's Angels...I still dont know. I got side tracked when I saw the news alert that a new drug was recently approved for all types of MS.
Seems interesting enough - if anything bothered me the most about me having MS was the fact, my walking has been affected.
http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=2586
I decided to go to the National MS Society's website, so I can register my team - Young Urban & MS or Lena's Angels...I still dont know. I got side tracked when I saw the news alert that a new drug was recently approved for all types of MS.
Seems interesting enough - if anything bothered me the most about me having MS was the fact, my walking has been affected.
http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=2586
Sunday, January 17, 2010
Marijuana Legalize in New Jersey...
I was reading this on the Roc4Life site. I have heard about it on the news, I never really gave it much thought. I just felt that suffering from the pain that is caused by multiple sclerosis is just something I just have to deal with. There are others who are dealing with much more. I just pray for strength and pop some Advil (Aleve simply doesn't work - and I am afraid of the Tylenol Arthritis Strength since it was recalled).
So anyway, how are jobs located in NJ going to handle this? If they give you drug tests before you start, and now you have marijuana in the system? LOL
But I know "they" - the gov't/employer is going to make it such that no you can't smoke a joint before you drive - shoooo - I myself dont want to even think of it.
But I guess my thought is that it is good for those who are suffering from chronic illnesses and are in pain, because I guess "popping Advils" aint for everyone and it can't be all that good.
So anyway, how are jobs located in NJ going to handle this? If they give you drug tests before you start, and now you have marijuana in the system? LOL
But I know "they" - the gov't/employer is going to make it such that no you can't smoke a joint before you drive - shoooo - I myself dont want to even think of it.
But I guess my thought is that it is good for those who are suffering from chronic illnesses and are in pain, because I guess "popping Advils" aint for everyone and it can't be all that good.
Wednesday, January 6, 2010
So What Now?
I feel real crappy today, there are times when my mind is like "WHOA!! - you got this!" but then at the same time my legs wanna throw me down. I cried when I tried to walk up the stairs at my house. I just felt helpless and if anyone knows me is that I hate to feel helpless. The only person helping me is my son. He had to help me lift my leg. I really feel like this MS is bullsh*t...I dislike it so much right now.
Usually, I would just shake it off - but today was different. I know when I go to sleep after taking meds, I will have to start all over again...and I will be ok.
I will get over it, I just got to sum up all my positive strength and it WILL be just fine.
I really need a stiff drink...lol. I really do.
Wait, I got a bottle of wine, I will open that.
Usually, I would just shake it off - but today was different. I know when I go to sleep after taking meds, I will have to start all over again...and I will be ok.
I will get over it, I just got to sum up all my positive strength and it WILL be just fine.
I really need a stiff drink...lol. I really do.
Wait, I got a bottle of wine, I will open that.
Saturday, January 2, 2010
HAPPY NEW YEAR!
Normally I would do the "resolutions" and this year when a friend asked me what are my resolutions, I simply replied that I won't do resolutions - only commitments.
I will commit, not necessarily in this order:
Become debt-free
Go to physical therapy
Keep up with Rebif therapy (so far so good, feeling ok...)
Take vitamins (already taking B-12 for energy)
For Sean & I to take a vacation - just mommy and the lil prince time
Become more willing to accept compliments.
Recently I was told that I was an inspirational, bc I do so much considering I am disabled. I was taken back by it. I just feel that I do what I do bc there is no other option. Yeah I work when I dont feel well bc I didnt hit that Mega Millions yet. LOL. Truthfully, I will still work if I did hit.
And finally, like everyone else - ROMANCE...yeah I said it...I need to work on finding someone who is worthy of me. I believe its my time, this is the year.
I am even going to go out, maybe do some speed dating. Shoo I got my pink crutches
Holla!
I will commit, not necessarily in this order:
Become debt-free
Go to physical therapy
Keep up with Rebif therapy (so far so good, feeling ok...)
Take vitamins (already taking B-12 for energy)
For Sean & I to take a vacation - just mommy and the lil prince time
Become more willing to accept compliments.
Recently I was told that I was an inspirational, bc I do so much considering I am disabled. I was taken back by it. I just feel that I do what I do bc there is no other option. Yeah I work when I dont feel well bc I didnt hit that Mega Millions yet. LOL. Truthfully, I will still work if I did hit.
And finally, like everyone else - ROMANCE...yeah I said it...I need to work on finding someone who is worthy of me. I believe its my time, this is the year.
I am even going to go out, maybe do some speed dating. Shoo I got my pink crutches
Holla!
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