My behavior lately has been very reclusive of late...I go to work, come home, go to work, come home. I don't necessarily think it's the fatigue. But I have to blame it. I don't go anywhere...then the next week I am no where to be found, I am on the go.
Last week I drove to Atlantic City and back within 7 hours, when I came home the only thing is to drop down and go to sleep. I think this fatigue is repercussion of that..so I am going to drop my microphone and walk away...
stay tuned during this interruption...
Saturday, July 17, 2010
Friday, July 2, 2010
Relationships
I never wanted this blog to be about relationships - especially romantic b/c I can only comment on mine and how MS came into play.
I've learned so much about who is "real" and who is for me, since MS has came to the forefront.
Once I was diagnosed, I've lost relationships (obvious that they were never "real") and I've gained new ones. I've developed greater friendships with some old ones and the most important relationship - was myself.
I learned not to put ANYONE before myself. If I am not well, I can not take care of my son.
I cut all my hair off - swore off relaxers - it was a very cleansing thing to do. I have to say I picked up other obsessions such as accessories and sneakers but more on that later.
What really matters is that everyone goes through relationships, some good,some bad, some lasting, some only for a minute. We really have to take from those relationships and just move on. *shrug*
You can't hold on to anything that wants to slip away.
I've learned so much about who is "real" and who is for me, since MS has came to the forefront.
Once I was diagnosed, I've lost relationships (obvious that they were never "real") and I've gained new ones. I've developed greater friendships with some old ones and the most important relationship - was myself.
I learned not to put ANYONE before myself. If I am not well, I can not take care of my son.
I cut all my hair off - swore off relaxers - it was a very cleansing thing to do. I have to say I picked up other obsessions such as accessories and sneakers but more on that later.
What really matters is that everyone goes through relationships, some good,some bad, some lasting, some only for a minute. We really have to take from those relationships and just move on. *shrug*
Mobility
It came a time that I wanted something else besides the cane to help me get around - it became so hard to walk. I was able to walk blocks upon blocks. So I decided to get a scooter, I was more than embarrassed about it. I am going to be honest. I'm already self conscious that I am walking with a cane.
A coworker brought in his mother in law's scooter to let me use for the MJB/Jay Z concert back in 2008 and I was very eager about it. And the great service I got at MSG from security and ticket agents - made me feel special. Like I had nothing to worry about. No one was looking at me with curiosity.
I soon got my own, and b/c my insurance coverage required that I pay 10% - I only paid $75!
That was such a low cost for me to get out of the house. I was no longer trapped.
The site that I used was www.pridemobility.com - I have the GoGo Ultra X.
It's really cool, it breaks down into 5 pieces (including the basket) which fits well into my trunk.
Now the only stares I get is from senior citizens and kids! I often just refer those people who actually ask where did I get it from.
The pharmacy that carried it was Elmora Pharmacy in Elizabeth, NJ.
If you want to find it near you, go to Pride Mobility's website and search for locations.
A coworker brought in his mother in law's scooter to let me use for the MJB/Jay Z concert back in 2008 and I was very eager about it. And the great service I got at MSG from security and ticket agents - made me feel special. Like I had nothing to worry about. No one was looking at me with curiosity.
I soon got my own, and b/c my insurance coverage required that I pay 10% - I only paid $75!
That was such a low cost for me to get out of the house. I was no longer trapped.
The site that I used was www.pridemobility.com - I have the GoGo Ultra X.
It's really cool, it breaks down into 5 pieces (including the basket) which fits well into my trunk.
The pharmacy that carried it was Elmora Pharmacy in Elizabeth, NJ.
If you want to find it near you, go to Pride Mobility's website and search for locations.
Monday, June 28, 2010
Funny MS Video
It is not often that people feel that multiple sclerosis is something to laugh at. But you got to laugh at life.
Break my stride
Today I didnt go to work today...mostly bc I am sick - how so?
Well, it's a variety of reasons...mainly bc the heat is oppressive...I think the humidity hates me.
Well that may be a strong word. I think it actually tries to break me down. It is trying to make me a failure and simply put - Failure is not an option.
Well, it's a variety of reasons...mainly bc the heat is oppressive...I think the humidity hates me.
Well that may be a strong word. I think it actually tries to break me down. It is trying to make me a failure and simply put - Failure is not an option.
Heat Wave
Ok, it has been over 90 for what it seems like an eternity.
I haven't been out the house since Friday, except to go to church yesterday. I then ran back home. I know the heat/humidity affects everyone differently - and good golly miss molly - its kickin my butt.
I am going to have to stay cool for now. Actually its gotten so bad that I will have to call out sick today from work. I've always been the one to be the 1st up in work. I arrive 30mins early b/c that is what I was just taught.
Not today my friend.
I haven't been out the house since Friday, except to go to church yesterday. I then ran back home. I know the heat/humidity affects everyone differently - and good golly miss molly - its kickin my butt.
I am going to have to stay cool for now. Actually its gotten so bad that I will have to call out sick today from work. I've always been the one to be the 1st up in work. I arrive 30mins early b/c that is what I was just taught.
Not today my friend.
Saturday, June 26, 2010
2010 - Update
Soooooo it's like I checked out and never came back on.
Well, first and utmost - I am doing well. I am blessed to be in good health and a good mood.
I promised a coworker - Q.D. that I will post something at least once a week, since I simply haven't posted. I need to use this blog, for what I originally started for. To bring to light to those like me, who have MS, or any other disability.
Sometimes, when you are young, urban...you may feel like there isn't as much information available to you as others.
So first things first, I did attend the 2010 MS Walk, at Liberty State Park in Jersey City. It was beautiful! Kinda of brisk, but beautiful nevertheless.
I felt so good after the walk, inspired by all of those who have MS that wasn't able to walk.
I had a great team of walkers with me that included coworkers - former and current - and of course my great-Uncle.
Even though some people couldn't show up, it was appreciated that they even thought about it.
Well, first and utmost - I am doing well. I am blessed to be in good health and a good mood.
I promised a coworker - Q.D. that I will post something at least once a week, since I simply haven't posted. I need to use this blog, for what I originally started for. To bring to light to those like me, who have MS, or any other disability.
Sometimes, when you are young, urban...you may feel like there isn't as much information available to you as others.
So first things first, I did attend the 2010 MS Walk, at Liberty State Park in Jersey City. It was beautiful! Kinda of brisk, but beautiful nevertheless.
I felt so good after the walk, inspired by all of those who have MS that wasn't able to walk.
I had a great team of walkers with me that included coworkers - former and current - and of course my great-Uncle.
Even though some people couldn't show up, it was appreciated that they even thought about it.
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