Wednesday, December 30, 2009

Its been a while since I felt this way

Its been quite a few months year...that I felt the way I did when I woke. I was eager and ready to go. Yeah it was cool, there was no wind coming up off that Hudson to my left. I got to work pretty early and I was eager to get upstairs and work.
I promised a co-worker that I would bring my crutches upstairs as part of my new year resolution, so I guess no more being lazy and riding the scooter everywhere.
Damn her! Nah...I'm kidding. I have to do it.
Its like FSA - either you use it or lose it (stupid payroll joke)...so I will walk dangit.

So I've been moody recently regarding my love life or lack thereof.
I know its only a matter of time before I meet and find someone worthy, but there are just some days where its just...this.

Friday, December 25, 2009

Merry Christmas!

not much to say but i'm thankful for all of those in my life - whether good or bad.
i've learned so much this year about myself and others. my relationships have made me stronger and i finally have come to realize this.
i will be back by new year's eve to put down my goals -  not necessarily resolutions, but my  new life goals.
i absolutely can not wait to go to church on sunday!

Wednesday, December 23, 2009

7 little steps...

I've realized now that I have issues with the extremes...the extreme humidity and extreme cold. Normally I like the cool weather, my joints feel good and I can move.
Today, its so cold outside and I hurt like its 105degrees. It took me more time than I expected to go up these 7 little steps. Felt like forever.

Saturday, December 12, 2009

Rebif

Whew! first 2 weeks done...
I've been out of commission,  not because I wanted too but had to rest up.
Once I started with the Rebif shots again, it made me seriously tired - often within an hour of taking the shot. I guess it could be that after taking it, I just sat around on the computer or watching tv.
In comparison to the Betaseron, I am ecstatic that I am back on it. I am sure my attitude has a lot to do with it also, since I gained so much weight while on Betaseron...even though I wasn't eating that much.
Today is B R I C K outside - lol - so I am going to try my very best to get outside today, plus I have no sitter for "the boy" and I want to go to this party from my friend's hubby. I really want to go...crutches and scooter be damned...I want to go.

Saturday, November 28, 2009

MS Walk 2010

Last year, I participated in the MS Walk for the first time since my diagnosis in 2007.
I had many feelings about it - you see I didn't want to accept the fact that I had MS, I didn't want to think that this was a death sentence, there was so many don'ts, hates, wondering why me? that went on.
Not that I don't go throught it still occassionally - that could be that I am not dating anyone right now (another issue...)
Once I did the walk, I walked away from it in a whole new light. I was happy, enthusiastic, overall felt a release about it. I am so going to be there next year with my newly named team (last year was Lena's Angels) Y.U & MS...I've already got a person lined up for tshirts, I've already told my family they better get their butts to me for the walk...sheeeeit. They better.


Here is some pictures from last year.

Talk MS

On November 18th, MS in BalanceSM will release a new online video: It’s a Marathon: Strategies to Help Maintain Your Treatment Regimen

In just 30 minutes, you will hear a MS LifeLines Nurse roundtable discussion of why it’s important to stay on therapy.
This Talk MS program will feature special guests, including:
Kathleen Costello, MS, CRNP, MSCN
MS LifeLines&reg Ambassador Elizabeth
Don't miss your opportunity to talk MS!
Join Talk MS on November 18th for your chance to submit a question to a physician, who may answer it in a future event!
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Phone registration is no longer available for MS in Balance webevents. Registration is only available online.
P.S. Do you want to learn more about MS LifeLines Nurses?
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Talk MS

Friday, November 27, 2009

Happy Thanksgiving

I am thankful for having such a great son, he is my joy and brings me love everyday. When this MS seems to take me by the throat and I seem to be suffocating, my boy says the most simplest things that makes me realize that I've got this already beaten - LOL.
Thankful for all the friends and people I've encountered.
And most of all, I thank God for allowing me to breathe every morning to see the sky and feel the breeze.