I never really thought about it...well thnnm, sking of course. I used o ski when I was younger, in my early teens, befire I discovered boys. After watching PUSH GIRLS on the Sundance Channel, it made me realize that I can continue to try to ski.
So apparently you sit in a chair lower to the ground to do it and there is volunteers that go down the hill with you. So check it out!
A blog to discuss and help those who are affected with Multiple Sclerosis, for those who are tired of the same ole 'wo is me attitude. I'm young, urban and I have MS...MS does not have me.
Friday, November 16, 2012
Tuesday, August 28, 2012
Some days are obviously more exciting.
Exciting for me this summer included finding out that NJ Medicaid does not cover me, even though I am unemployed and out of work. I do collect unemployment which is apparently over the $978 monthly income limit.
The supervisor, although empathized with me, could do nothing. So I scooted out the office - deflated but not defeated.
I contacted the medicine's manufacturer and explained the situation and they sent paperwork to me, so that I can get medicine at a discount or maybe even free.
*fingers crossed*
Push Girls
http://www.sundancechannel.com/push-girls/
This is perhaps my absolute FAVE show on TV today. It is a show on The Sundance Channel, which follow a group of women who are in wheelchairs.
Their smiles and friendship among each other is contagious. Just a few weeks ago, they showed how it was to go skiing with assisted skiing and I was thoroughly impressed. I went skiing as a teen a few times and I liked it a lot.
The show was picked up for a second season, I am so happy and can't wait for it to begin.
Exciting for me this summer included finding out that NJ Medicaid does not cover me, even though I am unemployed and out of work. I do collect unemployment which is apparently over the $978 monthly income limit.
The supervisor, although empathized with me, could do nothing. So I scooted out the office - deflated but not defeated.
I contacted the medicine's manufacturer and explained the situation and they sent paperwork to me, so that I can get medicine at a discount or maybe even free.
*fingers crossed*
Push Girls
http://www.sundancechannel.com/push-girls/
This is perhaps my absolute FAVE show on TV today. It is a show on The Sundance Channel, which follow a group of women who are in wheelchairs.
Their smiles and friendship among each other is contagious. Just a few weeks ago, they showed how it was to go skiing with assisted skiing and I was thoroughly impressed. I went skiing as a teen a few times and I liked it a lot.
The show was picked up for a second season, I am so happy and can't wait for it to begin.
Wednesday, May 23, 2012
Nothing Even Matters
I used to love this song, I used to think that nothing would matter. But I guess the MS did. Ahem, not trying to start a sad post. It just reminds me that love is out there, somewhere. I walked/scoot the MS Walk in Jersey City, it was a beautiful day. Filled with family, friends and strangers which made the day lovely. Every year for the walk, I enjoy myself even more - it is my annual prom.
Wednesday, March 21, 2012
New Oral Therapy BG 12
After seeing positive results for BG-12 (dimethyl fumarate) from several clinical trials involving people with relapsing-remitting MS, Biogen Idec submitted a New Drug Application to the U.S. Food and Drug Administration (FDA) for approval to market their new oral MS disease-modifying therapy.
Get the BG-12 facts
Tuesday, March 20, 2012
I am obsessed with...Pinterest
*Pauly D's voice* Ohhh yeah Pinterest yeah...
Thanks to Laini...I am now obsessed, I pin everything...I like everything. It has basically got me sprung.
I came across this pin and thought it was so interesting. It was about using essential oils for massages.
I want to try to get a massage bc I've only received a massage from a "professional" twice...we would leave out that I've gotten massages before...
http://balancedessentialsblog.com/young-living-essential-oils-and-multiple-sclerosis
Thanks to Laini...I am now obsessed, I pin everything...I like everything. It has basically got me sprung.
I came across this pin and thought it was so interesting. It was about using essential oils for massages.
I want to try to get a massage bc I've only received a massage from a "professional" twice...we would leave out that I've gotten massages before...
http://balancedessentialsblog.com/young-living-essential-oils-and-multiple-sclerosis
It is what it is
So Ive ignored the blog. As normal.
I am home now bc I lost my job, so there is no reason, why I shouldn't post more.
Ok...what has happened since the last posting?
I am back on the road with the peddlemaster. I absolutely love it, I don't know what I could have done without them. I do find the screw loosen up a big, but nothing that can't be fixed.
Since I am w/o a job, I am also w/o health insurance, which I am trying to get now via the state.
I reached out to MSLifelines who is part of my cuirrent Rebif therapy to see if I can get the drug at a discount. I've sent out the paperwork, so let's keep our fingers crossed. I've been w/o the Rebif for like 6 or 7 weeks and honestly I feel good.
Ive been doing green smoothies EVERY morning faithfully for energy. I know there is something out there to help me besides the expensive ass drugs, which btw has made me hurt more than now.
I will post the recipes that I did.
I am home now bc I lost my job, so there is no reason, why I shouldn't post more.
Ok...what has happened since the last posting?
I am back on the road with the peddlemaster. I absolutely love it, I don't know what I could have done without them. I do find the screw loosen up a big, but nothing that can't be fixed.
Since I am w/o a job, I am also w/o health insurance, which I am trying to get now via the state.
I reached out to MSLifelines who is part of my cuirrent Rebif therapy to see if I can get the drug at a discount. I've sent out the paperwork, so let's keep our fingers crossed. I've been w/o the Rebif for like 6 or 7 weeks and honestly I feel good.
Ive been doing green smoothies EVERY morning faithfully for energy. I know there is something out there to help me besides the expensive ass drugs, which btw has made me hurt more than now.
I will post the recipes that I did.
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